A few weeks ago I posted a story and pictures of my eyes
as seen by an ophthalmologist’s camera.
I have included it below this ramble.
Since April 29th, the day I was told that removing my eye was the best option, I have been referred to many specialists who have ordered a variety of tests (blood tests, x-rays and a CT Scan) to try to find a definite diagnosis.
I felt there was light at the end of the tunnel after the CT scan, although I was not certain that the light did not belong to a Big Mack 18 wheeler.
The CT told me that some lymph glands were swollen.
Potentially leukemia, or lymphoma. Not the light I wanted.
So off to the Andrew Love Cancer Centre in Geelong where the doctor suggested my problems were caused by long-term use (over 50 years) of prescribed medications. The light!
However, to be on the safe side he referred me to a surgeon who was happy to remove the largest lymph gland in my arm pit.
Pathology diagnosis of gland….all clear of the any cancers…but, there’s always a but, I do have Sarcoidosis.
Sarcoidosis is a disease which the medical profession do not know much about. Even Doctor Google is a bit short on information.
Apparently it has something to do with one’s immune system and usually affects the lungs and other organs including the eye.
Therefore my eye specialist has now declared that I have an A Typical Sarcoidosis something or other in my eye.
Often the disease is left untreated unless symptoms arise or treated with steroids.
So, including scans and blood tests I have marked off 41 medical visits this year, most of which have been since mid-February.
Last Monday I was called into my GP to see the report written by the
specialist who had, on the previous Tuesday
declared my eye melanoma free.
MGW was a witness to “…you don’t have a melly...”
Strange word for a specialist, but that’s what he said.
In his written report the best he could say was that
diagnosis was indeterminate.
Black and White Challenge:
Head or Facial Features.
Considering two of my facial features have been
front and centre of my thoughts for the past
few weeks/months this week my eyes are
the subject of my post.
A few months ago I made mention on this forum
that I was going to see an ophthalmologist.
After visiting my third specialist, this one at the
Eye and Ear Hospital in Melbourne, last Friday…
I was told that I had one healthy eye and one very sick eye (above).
The experts want me to trade it in on a glass eye.
Not my ideal scenario or outcome, considering it is
what I call my “Good Eye“.
The left one being short-sighted since the early 1960s.
So if I go missing for some time in a few weeks, or so,
this is the reason why.
All the above was written last Sunday.
Since then I have seen two more specialists and
have learned a bit more a bout melanomas of the eye.
Mine is very small and I have a loose retina as well.
At the moment I am quite a way from having
my eye removed and have another
appointment planned for late June.
Still a bit of a time bomb but I would not
wish anyone to hear this type of news
the way it was delivered last week.
MGW was telling her colleagues about
my problem on Wednesday.
One of them had a similar experience at the
Ear and Ear Hospital.
He was told he was going blind not long after
he arrived in Australia.
Fortunately his brother-in-law is an ophthalmologist
and he traveled back to his home country for a second opinion.
To this day both eyes are functioning quite well.